Comments for OncoLink Cancer Blogs http://www.oncolink.org/blogs Blogs from OncoLink Cancer Resources Wed, 01 Feb 2012 22:42:41 +0000 hourly 1 Comment on The CancerLand Bookshelf: A Taste of Caregiver Poetry by Donna http://www.oncolink.org/blogs/index.php/2012/01/the-cancerland-bookshelf-a-taste-of-caregiver-poetry/comment-page-1/#comment-5679 Donna Wed, 01 Feb 2012 22:42:41 +0000 http://www.oncolink.org/blogs/?p=1507#comment-5679 Alysa, What a gracious and thoughtful post. Thank you SO much for reading my work and putting it here. Stew's recovery (he's been cancer-free over a year!) is a gift. This book is my small gift to others who are going through it. Thank you again. With Hope, Health, and Healing Thoughts for all, Donna Alysa,

What a gracious and thoughtful post. Thank you SO much for reading my work and putting it here. Stew’s recovery (he’s been cancer-free over a year!) is a gift. This book is my small gift to others who are going through it. Thank you again.

With Hope, Health, and Healing Thoughts for all,
Donna

]]> Comment on Greetings from CancerLand: Splendidly Imperfect 50/50 by Jonnie Hickman http://www.oncolink.org/blogs/index.php/2012/01/greetings-from-cancerland-splendidly-imperfect-5050/comment-page-1/#comment-5670 Jonnie Hickman Tue, 31 Jan 2012 01:24:22 +0000 http://www.oncolink.org/blogs/?p=1527#comment-5670 Thank you for this post. I tend to think at times I am never going to laugh a real laugh again. I've been fighting 3 years now. People who tell me to keep positive or you will die sooner tick me off. I wasn't a 100% positive person before cancer. Nobody is ALWAYS anything or we would be robots. I also become annoyed with the semantics arguments. It feels like a war, so to help someone understand what it is like I call it a war. I think that the media needs to continue to be honest about it and maybe the fear of the diagnosis wouldn't be as terrifying. Cancer has changed so much than when my Aunt passed with it 35 years ago. My fellow survivor's are the ones that finally made me see that all of fights are different, but most of the things I have had to go through are the same. Thank you for this post. I tend to think at times I am never going to laugh a real laugh again. I’ve been fighting 3 years now. People who tell me to keep positive or you will die sooner tick me off. I wasn’t a 100% positive person before cancer. Nobody is ALWAYS anything or we would be robots. I also become annoyed with the semantics arguments. It feels like a war, so to help someone understand what it is like I call it a war. I think that the media needs to continue to be honest about it and maybe the fear of the diagnosis wouldn’t be as terrifying. Cancer has changed so much than when my Aunt passed with it 35 years ago. My fellow survivor’s are the ones that finally made me see that all of fights are different, but most of the things I have had to go through are the same.

]]> Comment on Brown Bag Web Chat: Focus on Lung Cancer by Carolyn Vachani, MSN, RN, AOCN http://www.oncolink.org/blogs/index.php/2011/09/focus-on-lung-cancer/comment-page-1/#comment-5624 Carolyn Vachani, MSN, RN, AOCN Wed, 11 Jan 2012 15:33:58 +0000 http://www.oncolink.org/blogs/?p=1319#comment-5624 Hi Ryan- I think it might be useful to tap into the resources of i[2]y (stupidcancer.com) - they have some chat rooms and you may be able to find a young survivor who has made a similar triumph. The group is all folks 15-40, so a better way to find young folks as opposed to a local support group. I wonder if meeting with the orthopedic surgeon to discuss concerns and suggestions would be helpful. I'm also going to email you a link to a story about Mark Herzlich- a survivor who now plays for the Giants. Hope that helps get you on the right track! Hi Ryan-
I think it might be useful to tap into the resources of i[2]y (stupidcancer.com) – they have some chat rooms and you may be able to find a young survivor who has made a similar triumph. The group is all folks 15-40, so a better way to find young folks as opposed to a local support group. I wonder if meeting with the orthopedic surgeon to discuss concerns and suggestions would be helpful. I’m also going to email you a link to a story about Mark Herzlich- a survivor who now plays for the Giants.
Hope that helps get you on the right track!

]]> Comment on Where Do I Find the Miracles? by Barbara L. Tejera http://www.oncolink.org/blogs/index.php/2012/01/where-do-i-find-the-miracles/comment-page-1/#comment-5623 Barbara L. Tejera Tue, 10 Jan 2012 01:41:10 +0000 http://www.oncolink.org/blogs/?p=1502#comment-5623 Indeed we are blessed with miracles every day and sometimes we forget how blessed we are. Essentially hope faith and trust is the biggest gift we have. Please never give up faith or hope. All is possible if we continue to fight. As monotonous as it is, we have go to sleep every night and awake the morning after. Yet every time we fall asleep we die and it is a miracle to awake with the rebirth of a new day. Everything in this world of ours is possible if we stick together for the same purpose with humility and love. My prayers are with you and with them!! God Bless!! Indeed we are blessed with miracles every day and sometimes we forget how blessed we are. Essentially hope faith and trust is the biggest gift we have. Please never give up faith or hope. All is possible if we continue to fight. As monotonous as it is, we have go to sleep every night and awake the morning after. Yet every time we fall asleep we die and it is a miracle to awake with the rebirth of a new day. Everything in this world of ours is possible if we stick together for the same purpose with humility and love. My prayers are with you and with them!! God Bless!!

]]> Comment on Brown Bag Web Chat: Focus on Lung Cancer by Ryan Hart http://www.oncolink.org/blogs/index.php/2011/09/focus-on-lung-cancer/comment-page-1/#comment-5618 Ryan Hart Sat, 07 Jan 2012 05:33:13 +0000 http://www.oncolink.org/blogs/?p=1319#comment-5618 I'm sorry; I didn't notice the lung cancer focus. I’m sorry; I didn’t notice the lung cancer focus.

]]> Comment on Brown Bag Web Chat: Focus on Lung Cancer by Ryan Hart http://www.oncolink.org/blogs/index.php/2011/09/focus-on-lung-cancer/comment-page-1/#comment-5617 Ryan Hart Sat, 07 Jan 2012 05:31:37 +0000 http://www.oncolink.org/blogs/?p=1319#comment-5617 So I am a recent survivor trying to get back to college baseball. The problem I am facing is that they took a significant graft from my fibula leaving my tibia to bear all the running stress, and it's not holding up so well. Despite a high amount of doubt surrounding me, I know I can do it and am not ready to give up. I want to make it for all those kids struck by cancer who never get the chance to do so and to show that one can thrive after cancer, just like Lance. Do you know of anyone who could get me some good advice on how to handle this situation? So I am a recent survivor trying to get back to college baseball. The problem I am facing is that they took a significant graft from my fibula leaving my tibia to bear all the running stress, and it’s not holding up so well. Despite a high amount of doubt surrounding me, I know I can do it and am not ready to give up. I want to make it for all those kids struck by cancer who never get the chance to do so and to show that one can thrive after cancer, just like Lance. Do you know of anyone who could get me some good advice on how to handle this situation?

]]> Comment on CancerLand Bookshelf: When My World Was Very Small: a memoir of family, food, cancer and my couch by Yetty Sudarman http://www.oncolink.org/blogs/index.php/2011/12/cancerland-bookshelf-when-my-world-was-very-small-a-memoir-of-family-food-cancer-and-my-couch/comment-page-1/#comment-5519 Yetty Sudarman Sat, 10 Dec 2011 05:57:26 +0000 http://www.oncolink.org/blogs/?p=1478#comment-5519 Yes, being a member of the cancer club is exclusive and private. Members understand the unspoken fear and doubt. I am not a believer that cancer survivorship is equivalent to being a hero. A hero risks one's life to save other lives and succeeded. We, by the skills of our oncologists and the grace of God survive so, there is nothing heroic about surviving cancer. Our oncologists/nurses/healers are our heroes. Courageous, determined and hopeful would be more like what we are. Yes, being a member of the cancer club is exclusive and private. Members understand the unspoken fear and doubt. I am not a believer that cancer survivorship is equivalent to being a hero. A hero risks one’s life to save other lives and succeeded. We, by the skills of our oncologists and the grace of God survive so, there is nothing heroic about surviving cancer. Our oncologists/nurses/healers are our heroes. Courageous, determined and hopeful would be more like what we are.

]]> Comment on Howdy & Welcome to Christina’s Resource Round-up! by Elizabeth Diacont http://www.oncolink.org/blogs/index.php/2011/06/welcome-to-christinas-resource-round-up/comment-page-1/#comment-3564 Elizabeth Diacont Fri, 01 Jul 2011 18:12:38 +0000 http://www.oncolink.org/blogs/?p=1183#comment-3564 Christina, great job! You make me proud to be a social worker... I will be checking your blog regulary. Thanks for being so committed, passionate, and generous in spreading/sharing your knowledge. I appreciate all you do. Liz Christina, great job! You make me proud to be a social worker… I will be checking your blog regulary. Thanks for being so committed, passionate, and generous in spreading/sharing your knowledge. I appreciate all you do.
Liz

]]> Comment on Brown Bag Chat: How Much Do You Know About HPV? by Carolyn Vachani, MSN, RN, AOCN http://www.oncolink.org/blogs/index.php/2010/01/how-much-do-you-know-about-hpv/comment-page-1/#comment-3555 Carolyn Vachani, MSN, RN, AOCN Mon, 27 Jun 2011 13:54:13 +0000 http://www.oncolink.org/blogs/?p=384#comment-3555 Hi- While I would think you could get vaccinated if you were willing to pay for it, I am not certain there would be much benefit. Just as we are not sure the benefit for women in their 30s and older, it is highly likely that they have already been infected and developed their own immunity to the strains they have been exposed to. Unfortunately, we don't have a good test to screen to see if you have been exposed or not. While a lot has been learned, there is so much we don't know, so it is hard to know if you would gain any benefit or not. Sorry I don't have a better answer! Carolyn Hi-
While I would think you could get vaccinated if you were willing to pay for it, I am not certain there would be much benefit. Just as we are not sure the benefit for women in their 30s and older, it is highly likely that they have already been infected and developed their own immunity to the strains they have been exposed to. Unfortunately, we don’t have a good test to screen to see if you have been exposed or not. While a lot has been learned, there is so much we don’t know, so it is hard to know if you would gain any benefit or not.
Sorry I don’t have a better answer!
Carolyn

]]> Comment on Brown Bag Chat: How Much Do You Know About HPV? by RMB http://www.oncolink.org/blogs/index.php/2010/01/how-much-do-you-know-about-hpv/comment-page-1/#comment-3549 RMB Sun, 26 Jun 2011 07:16:36 +0000 http://www.oncolink.org/blogs/?p=384#comment-3549 I am male 42. I would like to get the vaccine. I have been pretty selective for sex partners (first encounter at 23) in monogamic relationship. I married my third partner until I was 36. I had 2 other (over 33) monogamic partners since. Next month I will meet my first partner-love who lives abroad; however, I know she has recently had an operation to get pre-cancer cervix tissue out. Thus, it is likely that she may still be infected with the 16 or 18 strain of the virus. Can I get vaccinated if I pay for it? I am male 42. I would like to get the vaccine. I have been pretty selective for sex partners (first encounter at 23) in monogamic relationship. I married my third partner until I was 36. I had 2 other (over 33) monogamic partners since. Next month I will meet my first partner-love who lives abroad; however, I know she has recently had an operation to get pre-cancer cervix tissue out. Thus, it is likely that she may still be infected with the 16 or 18 strain of the virus. Can I get vaccinated if I pay for it?

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