Staging System for Lymphedema

Last Modified: August 13, 2006

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Question

Dear OncoLink "Ask The Experts,"
Is there a staging system for lymphedema?

Answer

Linda McGrath Boyle PT, DPT CLT-LANA, Cancer Rehab Specialist and OncoLink Lymphedema Team Editor, responds:

The International Society of Lymphology has established a staging system for persons with lymphedema.

For persons with lymphedema of the limbs, the following stages apply:

Stage 0 Subclinical lymphedema
No swelling or pitting of the skin
Symptom of heaviness in the limb due to excess fluid
May be present for months or years before progressing
Stage I Swelling that is present can be "reversed" by elevating the swollen area
The first visible symptoms may occur during this stage
Pressing a finger into the swollen area leaves an indent. This is called "pitting edema"
No swelling is present in the morning, but gradually increases throughout the day.
Stage II The amount of swelling increases and is not reduced by elevating the involved area.
The tissue feels thick and firm when compared to the uninvolved side.
There is still pitting edema, but the indent is often harder to create due to scarring of the tissues.
There is an increased risk of cellulitis (infection)
Stage III The skin is hard and swelling cannot be reduced without treatment.
Typically the affected area is large and very full.
Chronic skin inflammation is evident.
Skin is thick and tough.
Lymph may leek through damaged skin.

The following stages apply for lymphedema of the head and neck:

Stage 0 Local swelling
No changes in normal function (range of motion, eating, speaking)
Stage I Local swelling
Does affect normal function
Stage II General swelling of the face and neck
Does affect normal function
Stage III Severe swelling with skin ulcers or brain swelling
Unable to eat effectively

The following stages apply for lymphedema of the trunk and genitals:

Stage 0 Swelling present
Difficulty seeing bony areas
Pitting of the skin
Stage I Bony areas are difficult to identify
Natural skin folds are not apparent
The body part changes shape due to swelling
Stage II Lymph fluid weeps through the skin
Normal function is affected
Drastic changes occur in the shape of the body part
Stage III Lymphedema becomes disabling
Loss of normal function


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