The internet can be a valuable resource for a patient who wants to find out more information about their disease. However, remember that not every website contains accurate and reliable information. The websites listed below offer up to date information and resources.
The Carcinoid Cancer Foundation
A nonprofit organization encouraging and supporting research and education on carcinoid and related neuroendocrine cancers. Provides educational information and links to additional support resources.
Caring for Carcinoid Foundation
Along with its focus on research, CFCF is committed to supporting patients, families, friends and caregivers by providing them with complete and up-to-date information. Also offers funding opportunities for educational programs for carcinoid support groups through their Sunflower grant program.
Neuroendrocrine Cancer Awareness Network (NCAN)
NCAN’s mission is to intensify awareness of neuroendocrine and carcinoid tumors through education, research funding and a telephone help line for patients and caregivers.
Website maintained by Novartis that provides education and supportive information for people with carcinoid cancer.
Confronting Pancreatic Cancer
Aims to present impartial knowledge about pancreatic cancer to help optimize personal treatment strategies including specific information on carcinoid, neuroendocrine and islet cell tumor.
The NET Community, maintained by Novartis, helps NET patients and caregivers understand their disease and take part in their care.
OncoLink is designed for educational purposes only and is not engaged in rendering medical advice or professional services. The information provided through OncoLink should not be used for diagnosing or treating a health problem or a disease. It is not a substitute for professional care. If you have or suspect you may have a health problem or have questions or concerns about the medication that you have been prescribed, you should consult your health care provider.
Information Provided By: www.oncolink.org | © 2016 Trustees of The University of Pennsylvania