Resources for More Information: Clinical Trials

OncoLink Team
Last Modified: September 27, 2016

The internet is a valuable resource for patients to find more information about their specific disease.  At the same time, it is a vast place for information so not every website contains accurate and reliable information.  These websites offer up-to-date information and resources.

General Clinical Trials Information

The National Institute of Health

There is a wealth of clinical research within life sciences, but it is good to know some basic information about clinical trials. The NIH provides basic information for patients and care givers helping them to under what clinical trials are, how to pay for them, and making the decision to participate in a clinical trial. 

http://www.cancer.gov/about-cancer/treatment/clinical-trials

Answers to some commonly asked questions regarding clinical research

https://www.genome.gov/10000771/

 

MedlinePlus

Medline Plus summarizes clinical trials and provides additional resources that offer support, assistance and a more in-depth understanding of clinical trials. 

https://medlineplus.gov/clinicaltrials.html?PHPSESSID=d11ad337aea4cca0d650850ec6b8e02e

 

American Society of Clinical Oncology

There are many ways to find clinical trials that may best suit individual needs.  This website provides a platform for patients, caregivers, and healthcare professionals to find a clinical trials.

http://www.cancer.net/navigating-cancer-care/how-cancer-treated/clinical-trials/finding-clinical-trial

 

American Cancer Society: Clinical Trials-What You Need to Know

Booklet that provides comprehensive information about clinical trials, phases of studies, deciding to be part of a trial and protection of research (human) subjects.  Free and downloadable in PDF format.

http://www.cancer.org/treatment/treatmentsandsideeffects/clinicaltrials/whatyouneedtoknowaboutclinicaltrials/index.htm

 

Leukemia and Lymphoma Society: Clinical Trials

Provides free patient education information to patients with blood cancers who may be interested in clinical trials.

https://www.lls.org/treatment/types-of-treatment/clinical-trials

 

CancerCare

Provides free educational information to patients who may be interested in clinical trials.

http://www.cancercare.org/publications/23clinical_trials_improving_the_care_of_people_living_with_cancer

 

Lighting the Way: A Practical Guide to Clinical Trials

Patient Advocate Foundation

The Patient Advocate Foundation provides patients with up-to-date health insurance information and assistance with settling claims during a process that are often confusing and lengthy.

http://www.patientadvocate.org/index.php?p=674

 

Search for Clinical Trials

Emerging Med Navigator

Provides telephonic and online resources for clinical trials matching

https://platform.emergingmed.com/find-clinical-trials/oncolink

 

American Cancer Society Clinical Trials Matching Service

Provides a free, confidential program that helps patients, their families, and health care workers find cancer clinical trials most appropriate to a patient's medical and personal situation. Through a partnership with eviti, Inc., provided by NantHealth, we can help you find research studies that are testing new drugs or methods to prevent, detect, or treat cancer.

http://www.cancer.org/treatment/treatmentsandsideeffects/clinicaltrials/clinical-trials-matching-service-find-trial

 

Clinicaltrials.gov

From the National Institute of Health, this site lists current clinical trials that are open to new participants who meet specific trial qualifications

http://www.clinicaltrials.gov

 

Health Insurance & Financial Assistance

Centers for Medicare and Medicaid Services

If you are a Medicare or Medicaid recipient, Centers for Medicare and Medicaid Services provides all the information you need to know about how coverage works with different treatments.

https://www.cms.gov/Medicare/Coverage/ClinicalTrialPolicies/index.html

 

Patient Empowerment Network

The Patient Empowerment Network offers information and resources about financial assistance and the health insurance claims process.

https://www.powerfulpatients.org/we-can-help/clinical-trial-toolkit/financial-assistance-for-clinical-trials/

Blogs

The American Cancer Society “The Official Sponsor of Birthdays”
by Christina Bach, MSW, LCSW, OSW-C
July 10, 2011

Clinical Trials
by Bob Riter
July 5, 2012

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