Resources for More Information: Clinical Trials

Author: OncoLink Team
Last Reviewed:

The internet is a valuable resource for patients to find more information about their specific disease.  At the same time, it is a vast place for information so not every website contains accurate and reliable information.  These websites offer up-to-date information and resources.

General Clinical Trials Information

The National Institute of Health

There is a wealth of clinical research within life sciences, but it is good to know some basic information about clinical trials. The NIH provides basic information for patients and caregivers helping them to under what clinical trials are, how to pay for them and making the decision to participate in a clinical trial. 

http://www.cancer.gov/about-cancer/treatment/clinical-trials

Answers to some commonly asked questions regarding clinical research

https://www.genome.gov/10000771/

MedlinePlus

Medline Plus summarizes clinical trials and provides additional resources that offer support, assistance, and a more in-depth understanding of clinical trials. 

https://medlineplus.gov/clinicaltrials.html?PHPSESSID=d11ad337aea4cca0d650850ec6b8e02e

American Society of Clinical Oncology

There are many ways to find clinical trials that may best suit individual needs.  This website provides a platform for patients, caregivers, and healthcare professionals to find a clinical trial.

https://www.cancer.net/navigating-cancer-care/how-cancer-treated/getting-treatment-clinical-trial

American Cancer Society: Clinical Trials-What You Need to Know

A booklet that provides comprehensive information about clinical trials, phases of studies, deciding to be part of a trial, and protection of research (human) subjects.  Free and downloadable in PDF format.

http://www.cancer.org/treatment/treatmentsandsideeffects/clinicaltrials/whatyouneedtoknowaboutclinicaltrials/index.htm

Leukemia and Lymphoma Society: Clinical Trials

Provides free patient education information to patients with blood cancers who may be interested in clinical trials.

https://www.lls.org/treatment/types-of-treatment/clinical-trials

CancerCare

Provides free educational information to patients who may be interested in clinical trials.

http://www.cancercare.org/publications/23clinical_trials_improving_the_care_of_people_living_with_cancer

A Greater Understanding: A Practical Guide to Clinical Trials

Patient Advocate Foundation

The Patient Advocate Foundation provides patients with up-to-date health insurance information and assistance with settling claims during a process that are often confusing and lengthy.

https://www.patientadvocate.org/download-view/clinical-trials/

Search for Clinical Trials

Emerging Med Navigator

Provides telephonic and online resources for clinical trials matching

https://app.emergingmed.com/OncoLink/home

Clinicaltrials.gov

From the National Institute of Health, this site lists current clinical trials that are open to new participants who meet specific trial qualifications

http://www.clinicaltrials.gov

Health Insurance & Financial Assistance

Centers for Medicare and Medicaid Services

If you are a Medicare or Medicaid recipient, Centers for Medicare and Medicaid Services provides all the information you need to know about how coverage works with different treatments.

https://www.cms.gov/Medicare/Coverage/ClinicalTrialPolicies/index.html 

Patient Empowerment Network

The Patient Empowerment Network offers information and resources about financial assistance and the health insurance claims process.

https://powerfulpatients.org/resources/clinical-trial-mythbusters/

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