Resources for More Information: Carcinoid and Neuroendocrine Tumors
The internet can be a valuable resource for a patient who wants to find out more information about their disease. However, remember that not every website contains accurate and reliable information. The websites listed below offer up to date information and resources.
The Carcinoid Cancer Foundation
A nonprofit organization encouraging and supporting research and education on carcinoid and related neuroendocrine cancers. Provides educational information and links to additional support resources.
Caring for Carcinoid Foundation
Along with its focus on research, CFCF is committed to supporting patients, families, friends and caregivers by providing them with complete and up-to-date information. Also offers funding opportunities for educational programs for carcinoid support groups through their Sunflower grant program.
http://www.caringforcarcinoid.org/
Neuroendrocrine Cancer Awareness Network (NCAN)
NCAN’s mission is to intensify awareness of neuroendocrine and carcinoid tumors through education, research funding and a telephone help line for patients and caregivers.
www.netcancerawareness.org/about.htm
Carcinoid Link
Website maintained by Novartis that provides education and supportive information for people with carcinoid cancer.
Confronting Pancreatic Cancer
Aims to present impartial knowledge about pancreatic cancer to help optimize personal treatment strategies including specific information on carcinoid, neuroendocrine and islet cell tumor.
http://pancreatica.org/faq/carcinoid-neuroendocrine-islet-cell-tumors/
NET Community
The NET Community, maintained by Novartis, helps NET patients and caregivers understand their disease and take part in their care.
