Resources for More Information: Carcinoid and Neuroendocrine Tumors

Author: OncoLink Team
Last Reviewed: June 8, 2020

The internet can be a valuable resource for a patient who wants to find out more information about their disease. However, remember that not every website contains accurate and reliable information. The websites listed below offer up to date information and resources.

The Carcinoid Cancer Foundation

A nonprofit organization encouraging and supporting research and education on carcinoid and related neuroendocrine cancers. Provides educational information and links to additional support resources.

http://www.carcinoid.org/

Neuroendocrine Tumor Research Foundation (NETRF)

Along with its focus on research, NETRF is committed to supporting patients, families, friends, and caregivers by providing them with information and educational resources.

https://netrf.org/

Neuroendocrine Cancer Awareness Network (NCAN)

NCAN’s mission is to intensify awareness of neuroendocrine and carcinoid tumors through education, research funding, and a telephone helpline for patients and caregivers.

https://www.netcancerawareness.org

Neuroendocrine Cancer UK (formerly NET Patient Foundation)

A UK & Ireland based organization providing education and support.

www.netpatientfoundation.org

Confronting Pancreatic Cancer

Aims to present impartial knowledge about pancreatic cancer to help optimize personal treatment strategies including specific information on carcinoid, neuroendocrine, and islet cell tumor.

http://pancreatica.org/faq/carcinoid-neuroendocrine-islet-cell-tumors/

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