Resources for More Information: Advance Care Planning

Author: OncoLink Team
Last Reviewed:

The internet is a valuable resource for patients to find more information about their specific disease. At the same time, it is a vast place for information so not every website contains accurate and reliable information. These websites offer up-to-date information and resources.

The Conversation Project

Dedicated to improving communication about an individual’s wishes for end of life care. It offers educational resources and first-person accounts of talking about care at the end of life. Resources available in multiple languages.

http://www.theconversationproject.org

Engage with Grace: The One Slide Project

A project aimed at encouraging conversations about end of life wishes before a crisis occurs.

http://engagewithgrace.org/

Prepare for Your Care

A step-by-step program with video modules to help you think about what medical care you would or would not want when faced with life-threatening illness/accidents.

https://www.prepareforyourcare.org/index.php

Speak Up

Canadian based resources that provides resources and tools for making advanced care directives. Also available in French.

http://www.advancecareplanning.ca/

NHPCO CaringInfo

Provides information and state-specific, free, downloadable advance directives.

http://www.caringinfo.org/i4a/pages/index.cfm?pageid=3277

Aging with Dignity-Five Wishes

Provides the “Five Wishes” living will document which meets legal requirements in 42 states and the District of Columbia and is available in 28 languages. Also provides resources for end of life care planning for children and adolescents.

https://agingwithdignity.org/

National POLST 

POLST are portable medical orders for what kind of care you would want/not want if you are seriously ill. The POLST form tells providers what treatments you want and about your goals of care even if you are transferred to a nursing home, hospice, or receiving care in another setting. 

https://polst.org/

American Bar Association Tool Kit for Health Care Advance Planning

Provides tools for naming a health care agent/proxy and advance directives.

https://www.americanbar.org/groups/law_aging/resources/health_care_decision_making/consumer_s_toolkit_for_health_care_advance_planning/

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