Resources for More Information: Myelodysplastic Syndromes (MDS)

Author: Christina Bach, MBE, LCSW, OSW-C
Last Reviewed: June 22, 2026

find my

There is a lot of information on the internet about cancer. These websites have been reviewed by OncoLink and found to be trustworthy and up-to-date.

Aplastic Anemia and MDS International Foundation

Provides education, a patient helpline, and support for people coping with MDS and other bone marrow failure diseases.

https://www.aamds.org/

MDS Foundation

Founded by physicians and researchers dedicated to providing an ongoing exchange of information related to MDS to an international audience. Provides a patient message board and patient/caregiver forums for online connections, as well as extensive educational materials and clinical trial information.

https://www.mds-foundation.org/

Blood Cancer United 

(formerly known as the Leukemia and Lymphoma Society)

Provides disease information, support resources, and co-pay assistance.

https://bloodcancerunited.org/