Resources for More Information: Myelodysplastic Syndromes (MDS)

Author: OncoLink Team
Last Reviewed:

The internet is a valuable resource for patients to find more information about their specific disease. At the same time, it is a vast place for information so not every website contains accurate and reliable information. These websites offer up-to-date information and resources.

Aplastic Anemia and MDS International Foundation

Provides education, a patient helpline and support for people coping with MDS and other bone marrow failure diseases. 

www.aamds.org

MDS Foundation

Founded by physicians and researchers dedicated to providing an ongoing exchange of information related to MDS to an international audience. Provides a patient message board and patient/caregiver forums for online connections as well as extensive educational materials and clinical trial information.

www.mds-foundation.org 

Leukemia and Lymphoma Society

Provides disease information, support resources, and co-pay assistance.

http://www.lls.org/

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